Sites currently opened for patient recruitment:
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Dr. Jeffrey Statland
University of Kansas
Fairway, Kansas
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Dr. Vikki Stefans
Arkansas Children’s Hospital
Little Rock, Arkansas
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Dr. Tulio Bertorini
Wesley Neurology Clinic
Memphis, Tennessee
-
Dr. Marisa Couluris
Shriners Children’s Hospital
Tampa, Florida
-
Dr. Bradley Troxler
University of Alabama
Birmingham, Alabama
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Dr. Cori Daines
Banner University
Tucson, Arizona
-
Dr. Russell Butterfield
University of Utah
Salt Lake City, Utah
-
Dr. Thomas Crawford
Johns Hopkins University
Baltimore, Maryland
-
Dr. Stephen Smith
Gillette Children’s Specialty Healthcare
Saint Paul, Minnesota
-
Dr. Warren Marks
Cook Children’s Medical Center
Fort Worth, Texas
-
Dr. Oscar Henry Mayer
Children’s Hospital of Philadelphia
Philadelphia, Pennsylvania
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Dr. Benjamin Brooks
Carolinas Healthcare System
Charlotte, North Carolina
-
Dr. James Woodward
Phoenix Children’s Hospital
Phoenix, Arizona
-
Dr. David Michelson
Loma Linda University Health System
Loma Linda, California
-
Dr. Craig McDonald
UC Davis Department of Physical Medicine and Rehabilitation
Sacramento, California
-
Dr. Andre Prochoroff
MetroHealth Medical Center
Cleveland, Ohio
-
Dr. Perry Shieh
David Geffen School of Medicine at UCLA
Los Angeles, California
-
Dr. Leigh Ramos-Platt
Children’s Hospital Los Angeles
Los Angeles, California
-
Dr. Han Phan
Center for Integrative Rare Disease Research
Atlanta, Georgia
-
Dr. Kathy Mathews
University of Iowa
Iowa City, Iowa
-
Dr. Basil Darras
Children’s Hospital Boston
Boston, Massachusetts
-
Dr. Cuixa Tian
Cincinnati Children’s Hospital
Cincinnati, Ohio
Sites not yet opened for patient recruitment:
-
Dr. Emma Ciafaloni
University of Rochester
Rochester, New York
Sites currently opened for patient recruitment:
-
Pr. Gunnar Buyse
University Hospital Leuven
Leuven, Belgium
-
Dr. Laurent Servais
CHR Citadelle
Liège, Belgium
-
Pr. Eugenio Mercuri
Policlinico Universitario "A.Gemelli"
Rome, Italy
-
Dr. Maria Grazia d’Angelo
Fondazione IRCCS Eugenio Medea
Bosisio Parini, Italy
-
Dr. Luisa Politano
Seconda Università degli Studi di Napoli
Naples, Italy
-
Dr. Francina Munell
Hospital Universitari Vall d’Hebron
Barcelona, Spain
-
Dr. Juan Jesus Vilchez
Hospital La Fe de Valencia
Valencia, Spain
-
Dr. Andrea Klein
Universitäts-Kinderspital beider Basel
Basel, Switzerland
-
Dr. Michela Guglieri
John Walton Muscular Dystrophy Research Centre
Newcastle, UK
-
Dr. Rosaline Quinlivan
National Hospital for Neurology and Neurosurgery
London, UK
-
Dr. Teresa Gidaro
Hôpital Armand Trousseau
Paris, France
-
Dr. Jean-Marie Cuisset
CHRU de Lille
Lille, France
-
Dr. Ulrike Walther-Louvier
CHRU de Montpellier
Montpellier, France
-
Dr. Claude Cancès
Hôpital des Enfants
Toulouse, France
-
Pr. Ulrike Schara
Universitätsklinikum Essen
Essen, Germany
-
Dr. Anne-Marie Childs
Leeds Teaching Hospital NHS Trust
Leeds, UK
-
Dr. Pinki Munot
Great Ormond Street Hospital for Children
London, UK
-
Dr. Tracey Willis
Robert Jones and Agnes Hunt Orthopaedic Hospital
Oswestry, UK
-
Dr. Sebahattin Cirak
Uniklinik Köln Klinik und Poliklinik für Kinder- und Jugendmedizin
Cologne, Germany
-
Pr. Günther Bernert
Gottfried von Preyer'sches Kinderspital
Vienna, Austria
-
Pr. Yann Péréon
Hôpital Hôtel Dieu
Nantes, France
-
Pr. Angela Kaindl
Universitätsmedizin Berlin Campus
Virchow-Klinikum
-
Pr. Janbernd Kirschner
Universitätsklinik Freiburg Zentrum für Kinderheilkunde und Jugendmedizin
Freiburg, Germany
-
Pr. Wolfgang Müller-Felber
Zentrum für neuromuskuläre
Erkrankungen Munich, Germany
-
Dr. Jessika Johannsen
Universitätsklinikum Hamburg-Eppendorf, Klinik für Kinder- und Jugendmedizin
Hamburg, Germany
-
Dr. Claudio Bruno
Istituto Giannina Gaslini
Genova, Italy
-
Pr. Giuseppe Vita
AOU Policlinico "G. Martino"
Messina, Italy
-
Dr. Valeria Sansone
Centro Clinico NEMO - Niguarda Hospital
Milan, Italy
-
Dr. Angela Berardinelli
Fondazione IRCCS “C. Mondino” di Pavia
Pavia, Italy
-
Dr. Elena Pegoraro
Reparto Di Neurologia dell'Osperdale Di Padova
Padova, Italy
-
Dr. Chiara Straathof
LUMC
Leiden, The Netherlands
-
Pr. Imelda De Groot
Radboud university medical centre
Nijmegen, The Netherlands
-
Dr. Andres Nascimiento
Hospital Sant Joan de Déu Neuropediatra
Barcelona, Spain
-
Dr. Marcos Madruga
Hospital Universitario Virgen del Rocio
Sevilla, Spain
-
Dr. Mar Tulinius
Sahlgrenska University Hospital
Gothenborg, Sweden
Sites not yet opened for patient recruitment:
-
Dr. Samuel Pascual
Hospital Universitario La Paz
Madrid, Spain
-
Dr. Thomas Sejersen
Karolinska Universitetssjukhuset
Solna, Sweden
-
Dr Declan O’Rourke
Children’s University Hospital
Dublin, Ireland
-
Dr Sithara Ramdas
Oxford University Hospitals NHS Foundation Trust
Oxford, UK
-
Dr Channa Hewamadduma
Royal Hallamshire Hospital
Sheffield, UK
-
Dr. Ágnes Herczegfalvi
Semmelweis University
Budapest, Hungary
-
Pr Ivailo Tournev
Sofia Medical University
Sofia, Bulgaria
Sites not yet opened for patient recruitment:
-
Pr. Yoram Nevo
Institute of Neurology at Schneider Children's Medical Center of Israel
Petah Tikva, Israel
