Sites currently opened for patient recruitment:
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Dr. Jeffrey Statland
University of Kansas
Fairway, Kansas
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Dr. Vikki Stefans
Arkansas Children’s Hospital
Little Rock, Arkansas
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Dr. Tulio Bertorini
Wesley Neurology Clinic
Memphis, Tennessee
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Dr. Marisa Couluris
Shriners Children’s Hospital
Tampa, Florida
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Dr. Bradley Troxler
University of Alabama
Birmingham, Alabama
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Dr. Cori Daines
Banner University
Tucson, Arizona
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Dr. Russell Butterfield
University of Utah
Salt Lake City, Utah
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Dr. Thomas Crawford
Johns Hopkins University
Baltimore, Maryland
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Dr. Marcia Felker
Indiana University
Indianapolis, Indiana
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Dr. Stephen Smith
Gillette Children’s Specialty Healthcare
Saint Paul, Minnesota
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Dr. Warren Marks
Cook Children’s Medical Center
Fort Worth, Texas
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Dr. Oscar Henry Mayer
Children’s Hospital of Philadelphia
Philadelphia, Pennsylvania
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Dr. Benjamin Brooks
Carolinas Healthcare System
Charlotte, North Carolina
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Dr. James Woodward
Phoenix Children’s Hospital
Phoenix, Arizona
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Dr. David Michelson
Loma Linda University Health System
Loma Linda, California
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Dr. Craig McDonald
UC Davis Department of Physical Medicine and Rehabilitation
Sacramento, California
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Dr. Andre Prochoroff
MetroHealth Medical Center
Cleveland, Ohio
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Dr. Perry Shieh
David Geffen School of Medicine at UCLA
Los Angeles, California
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Dr. Leigh Ramos-Platt
Children’s Hospital Los Angeles
Los Angeles, California
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Dr. Han Phan
Center for Integrative Rare Disease Research
Atlanta, Georgia
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Dr. Kathy Mathews
University of Iowa
Iowa City, Iowa
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Dr. Basil Darras
Children’s Hospital Boston
Boston, Massachusetts
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Dr. Cuixa Tian
Cincinnati Children’s Hospital
Cincinnati, Ohio
Sites currently opened for patient recruitment:
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Pr. Gunnar Buyse
University Hospital Leuven
Leuven, Belgium
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Dr. Laurent Servais
CHR Citadelle
Liège, Belgium
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Pr. Eugenio Mercuri
Policlinico Universitario "A.Gemelli"
Rome, Italy
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Dr. Maria Grazia d’Angelo
Fondazione IRCCS Eugenio Medea
Bosisio Parini, Italy
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Dr. Luisa Politano
Seconda Università degli Studi di Napoli
Naples, Italy
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Dr. Francina Munell
Hospital Universitari Vall d’Hebron
Barcelona, Spain
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Dr. Juan Jesus Vilchez
Hospital La Fe de Valencia
Valencia, Spain
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Dr. Andrea Klein
Universitäts-Kinderspital beider Basel
Basel, Switzerland
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Dr. Michela Guglieri
John Walton Muscular Dystrophy Research Centre
Newcastle, UK
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Dr. Rosaline Quinlivan
National Hospital for Neurology and Neurosurgery
London, UK
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Dr. Teresa Gidaro
Hôpital Armand Trousseau
Paris, France
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Dr. Jean-Marie Cuisset
CHRU de Lille
Lille, France
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Dr. Ulrike Walther-Louvier
CHRU de Montpellier
Montpellier, France
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Dr. Claude Cancès
Hôpital des Enfants
Toulouse, France
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Pr. Ulrike Schara
Universitätsklinikum Essen
Essen, Germany
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Dr. Anne-Marie Childs
Leeds Teaching Hospital NHS Trust
Leeds, UK
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Dr. Pinki Munot
Great Ormond Street Hospital for Children
London, UK
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Dr. Tracey Willis
Robert Jones and Agnes Hunt Orthopaedic Hospital
Oswestry, UK
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Dr. Sebahattin Cirak
Uniklinik Köln Klinik und Poliklinik für Kinder- und Jugendmedizin
Cologne, Germany
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Dr. Guenther Bernert
Gottfried von Preyer'sches Kinderspital
Vienna, Austria
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Pr. Yann Pereon
Hôpital Hôtel Dieu
Nantes, France
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Pr. Angela Kaindl
Universitätsmedizin Berlin Campus
Virchow-Klinikum
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Pr. Janbernd Kirschner
Universitätsklinik Freiburg Zentrum für Kinderheilkunde und Jugendmedizin
Freiburg, Germany
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Pr. Wolfgang Müller-Felber
Center for neuromuscular disorders
Munich, Germany
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Dr. Jessika Johannsen
Universitätsklinikum Hamburg-Eppendorf, Klinik für Kinder- und Jugendmedizin
Hamburg, Germany
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Dr. Claudio Bruno
Istituto Giannina Gaslini
Genova, Italy
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Pr. Giuseppe Vita
AOU Policlinico "G. Martino"
Messina, Italy
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Dr. Valeria Sansone
Centro Clinico NEMO - Niguarda Hospital
Milan, Italy
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Dr. Angela Berardinelli
Fondazione IRCCS “C. Mondino” di Pavia
Pavia, Italy
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Dr. Elena Pegoraro
Reparto Di Neurologia dell'Osperdale Di Padova
Padova, Italy
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Dr. Chiara Straathof
LUMC
Leiden, The Netherlands
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Pr. Imelda De Groot
Radboud university medical centre
Nijmegen, The Netherlands
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Dr. Andres Nascimiento
Hospital Sant Joan de Déu Neuropediatra
Barcelona, Spain
Sites not yet opened for patient recruitment:
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Dr. Samual Pacual
Hospital Universitario La Paz
Madrid, Spain
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Dr. Marcos Madruga
Hospital Universitario Virgen del Rocio
Sevilla, Spain
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Dr. Thomas Sejersen
Karolinska Universitetssjukhuset
Karolinska, Sweden
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Dr. Mar Tulinius
Sahlgrenska University Hospital
Gothenburg, Sweden
Sites not yet opened for patient recruitment:
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Pr. Yoram Nevo
Institute of Neurology at Schneider Children's Medical Center of Israel
Petah Tikva, Israel
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